Archive for the ‘Multiple Sclerosis’ Category

Welfare changes overdue

Tuesday, December 9th, 2008

As posted at: www.journalgazette.net

Diana Cornwell is pleased to hear about changes to the welfare eligibility process, but they don’t erase the fact that a problem-plagued system eliminated her food stamp assistance for three months this year, sending the single mother of three to a food bank.

Diagnosed with multiple sclerosis in 2000 and unable to work since 2004, Cornwell is set for a welfare recertification interview on Tuesday, when a call center employee is supposed to contact her between 2 and 4 p.m. If she misses the call or the employee doesn’t call, she fears it could trigger the same problems she experienced last summer, when she had to use money earmarked for utility bills to buy food. As a result, her gas service was disconnected.

Cornwell’s experience isn’t rare, unfortunately. Since Indiana’s Family and Social Services Administration began rolling out the so-called welfare modernization, stories of missed phone interviews, lost paperwork and dropped benefits have become legion. They are undoubtedly a factor in the demand on area food pantries and soup kitchens.

Changes announced last week should reduce those problems. FSSA will streamline the eligibility process by reducing the number of questions on the application form and by eliminating some follow-up interview requirements. Food stamp recipients will be interviewed once a year instead of every six months. Clients with disabilities, like Cornwell, will be interviewed once every two years, as will seniors.

“These are great improvements on paper,” Rep. Suzanne Crouch, R-Evansville, told the Associated Press. “But we need to make sure they are improving the actual process.”

Dan Skinner, a Frankton resident who volunteers his time helping clients who lose their benefits, was more skeptical.

“Yes, it will help,” he said. “But it doesn’t get at the core problem of an antiquated computer system and of personnel not equipped to help.”

Skinner said hospitals, nursing homes and social service agencies have employees “working their hearts out to get help for people.”

In 2007, the state signed a $1.6 billion, 10-year contract with IBM Corp. and Affiliated Computer Services to implement the call center system and Web application program, mostly replacing the caseworkers in county offices. The system, which has been rolled out in all but 33 counties, works for some of the 1.1 million welfare clients, but it has been especially troublesome for older residents and those with cognitive disabilities that make it difficult to navigate a phone system or Web site.

The changes are expected to reduce the number of phone interviews with aid recipients by 32,000 a month. That will ease the bottleneck and reduce the opportunity for lost information, but it still leaves vulnerable Hoosiers at the mercy of call center workers who appear to be overwhelmed or unauthorized to help.

“I miss my caseworker. It’s nice having someone actually be nice to you,” said Cornwell, a Fort Wayne resident.

The FSSA employee formerly assigned to her from the state’s Rudisill Boulevard office had a disability himself and seemed to demonstrate empathy for her struggles. By contrast, she had to plead her case last summer to a call center worker who tersely told her she was going to have to be patient because “there are a lot of people in this situation.”

An FSSA spokeswoman said last week that the changes weren’t made in response to complaints from lawmakers but were just a part of the “ongoing development of the system.”

In the upcoming session, legislators should be prepared to speak more loudly to ensure that FSSA comes up with more than a Band-Aid fix to a system that is likely to continue shortchanging needy Hoosiers until its fundamental flaws are addressed.

Multiple Sclerosis self-help group begins

Monday, December 1st, 2008

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A new Multiple Sclerosis self-help group is meeting the first Tuesday of each month at 6:30 p.m. at River Valley Christian Church, 2806 Burton Lane, in Martinsville. For more information, call Carrole Ferguson at 765-346-1411 or Norman Able at 765-349-2008. MS caregivers are welcome.

Indiana MS State Chapter

Thursday, November 27th, 2008

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Indiana State Chapter

7301 Georgetown Road, Suite 112Indianapolis, IN 46268Phone: 317-870-2500Fax: 317-870-2520Email: FIGHTMS@MSINDIANA.ORGWebsite: Indiana State Chapter website

Bladder Health Week, November 16-22, 2008

Wednesday, November 19th, 2008

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In honor of Bladder Health Week we are posting information on bladder care during exercise.  Today we will focus on those with Multiple Sclerosis and Thursdays focus will be Resistance Training for those with physical disabilites.  

 

 

As posted at:

National Center on Physical Activity and Disability

 

http://www.ncpad.org 

Best Exercises and Measurement of Aerobic and/or Strength Capacities

TrainingRegarding best exercises, in 1992 Ponichtera et al. measured muscle torque at several speeds for both concentric and eccentric contraction on 9 subjects with multiple sclerosis and 9 healthy controls who generated isokinetic contractions of the quadriceps and hamstrings on an isokinetic dynamometer. They concluded that strengthening programs focusing on concentric exercises at 90 degrees per second may be the preferred strengthening exercise for subjects’ quadriceps and hamstring muscles.

MeasurementIn 1993, the same team examined maximum aerobic capacity in 9 subjects with multiple sclerosis (EDSS 1-4) and 9 control subjects on recumbent leg ergometers on land and in water. They determined that some persons with multiple sclerosis (depending on level of impairment) could attain maximum aerobic capacity without side effects, whereas those with more physical impairments would need more adjustments, such as for leg cycling (Ponichtera et al., 1993).

In 1995, Ponichtera et al. studied the best means of exercise testing and practice for persons with multiple sclerosis. Vo2max was measured in a discontinuous, progressive intensity exercise test on 10 subjects with multiple sclerosis and 10 control subjects generating each of 3 modes of ergometry (leg, arm, and leg/arm) on 3 separate days. The investigators concluded that the combined leg/arm ergometry is preferred because (1) upper extremities need more training and training legs alone is insufficient, and (2) using leg and arm power disburses the exercise load over a larger muscle mass and there is less possibility for “localized” fatigue.

Regarding measurement of strength capacities, Pepin et al. (1998), conducted a study of 14 subjects with multiple sclerosis who performed isometric handgrip contractions at 30% maximal voluntary contractions (MVC) to the point of fatigue. The results showed that it is possible to get consistent reliable responses to this exercise, despite motor dysfunction. (The MVC reliability estimates were 0.98.) The authors, however, did question the replicability of their findings for subjects with higher EDSS levels.

FatigueResearchers studying fatigue during exercise have attempted to isolate and measure fatigue and weakness/strength components, and have questioned to what extent the fatigue is due to intrinsic physiological deficits or deconditioning.

Recently, Schwid et al. (1999) studied the quantitative assessment of motor fatigue and strength in 20 subjects with multiple sclerosis and 20 control subjects. Maximal voluntary isometric strength, motor fatigue, and static fatigue were tested and retested by different exercise and strength tests in 2 distinct sessions, in order to measure test-retest reliability. Results showed that though subjects with multiple sclerosis had more fatigue for sustained contractions, repetitive contractions, and ambulation, motor fatigue was different from weakness since the fatigue was not correlated with weakness from individual muscles. This suggests that strength and motor fatigue can be quantified reliably.

In 1994, Kent-Braun et al. studied a sample of 6 subjects with multiple sclerosis and 8 control subjects to investigate the role of metabolism in muscle fatigue during exercise. They measured the peak force generated from a maximal voluntary isometric contraction during 3 sessions and determined that for mildly impaired persons with multiple sclerosis, muscle fatigue during exercise is not related to metabolic, but to activation failures. It was observed that decreases in force during exercise were because of peripheral, not central mechanisms. In 1995 and 1996, the same team studied electrically-stimulated exercise training for subjects with multiple sclerosis and discovered that the fatigue during exercise is because of muscle intrinsic, not metabolic, properties (Kent-Braun et al., 1996)(Sharma et al., 1995). 

 

 

As posted at:

National Center on Physical Activity and Disability

 

http://www.ncpad.org 

Living with MS Webcast

Friday, November 14th, 2008

Real Talk.Real Answers. Living with MS in Your 20s and 30s.Web Cast

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Tuesday, November 18 join young adults living with MS nationwide for the second installment of Real Talk. Real Answers. Living with MS in Your 20s and 30s.

If you’re in your 20s and 30s and living with MS, please join us on Tuesday, November 18 for candid conversation about the topics that matter to you.

Issues including communicating with family and friends about your MS, finding meaningful ways to get involved in support networks, learning to be your own best advocate,personal planning and more.

The event includes an interactive panel discussion with an opinion leader and a panel of your peers in their 20s and 30s who are living with MS. A moderator will lead the panel discussions to answer your most challenging questions.

You will be able to participate LIVE from wherever you are — virtually!

Register today at www.RealTalkRealAnswers.com. You can then access the Web cast from the same website. You’ll also find lots of other great resources on the site about living with MS in your 20s and 30s, including tips from opinion leaders, journal entries from your peers who are living with MS and much more.

Participants will have the opportunity to submit questions “real time”. For those who can’t watch live, the information will be posted on http://main.nationalmssociety.org/site/PageServer?pagename=HOM_REAL_homepage after the event.

Building & Maintaining Connections with Dr. Mary-Frances O’ConnorNovember 18, 20088:00 p.m. ET/7:00 p.m. CT/6:00 p.m. MT/5:00 p.m. PT

Real Talk. Real Answers. Living with MS in your 20s and 30s is brought to you by the National Multiple Sclerosis Society and MS LifeLines (R), a free resource sponsored by EMD Serono and Pfizer.

 

Date: Tuesday, November 18, 2008

Time: 8:00 PM

 

MS INDIANA CHAPTER

Thursday, November 13th, 2008

 

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Indiana State Chapter

7301 Georgetown Road, Suite 112Indianapolis, IN 46268Phone: 317-870-2500Fax: 317-870-2520Email: FIGHTMS@MSINDIANA.ORGWebsite: Indiana State Chapter website